Ovarian Cancer Resources

ovarian cancer resources

Below you will find an abbreviated list of resources that may be helpful in your ovarian cancer journey, whether it is your own or someone you love. We also encourage you to visit our Whisper Network Blog and write a post or comment and to contact other readers. If you have any listings you'd like to add, or if you're having trouble locating the appropriate resources, please contact us.

articles & periodicals

pdfTurning Point 2011 (From the Women's Cancers Program at Dana-Farber Cancer Institute)

pdfAfter Diagnosis: A Guide for Patients and Families (From the American Cancer Society)

pdfCaring for the Patient with Cancer at Home (From the American Cancer Society)

pdfUnderstanding Chemotherapy (From the American Cancer Society)

Older Articles/Periodicals
pdfWCP focuses new research on elusive ovarian cancer: Hide and Seek

pdfShould I ask my doctor for an annual CA 125 blood test to check for early signs of ovarian cancer?

pdfRamping up research: A multipronged attack on ovarian cancer

pdfBroken bones, the Pill, and ovarian cancer: Unexpected discovery may lower ovarian cancer risk

pdfWhat every woman should know: New effort brings screening, information to the underserved

at-home care & services

Art of Care Services

awareness & information

The Giving Common

United States Government's National Cancer Institute

Ovarian Cancer Awareness

American Cancer Society

Johanna's Law


books, articles & magazines

Couples Confronting Cancer: Keeping Your Relationship Strong by Joy Fincannon and Katherine Bruss
Cancer can be a disruptive and stressful element in a relationship, and this guide provides information about the illness, suggesting ways to work through conflict to create intimacy and to deal with it more successfully. It shows couples how to solve or avert problems, allowing partners to become closer and communicate more easily and truthfully with one another both during and beyond the cancer experience.

The Median Isn't the Message by Stephen Jay Gould
Widely available on-line, this essay by Harvard evolutionary biologist recounts his experience with a rare form of cancer and his contention (ultimately proven right) that the "median survival rate" was not useful in determining the course of his own disease.

The Body in Pain by Elaine Scarry
A book-length study of the ways in which pain "unmakes" language, and the challenges it presents. (Scarry uses instances from the political world in her first chapters, talking primarily about torture; she also includes examples from medicine and illness, but her main interest is theoretical and philosophical.)

The Middle Place by Kelly Corrigan
A warm, loving, funny memoir about a daughter's experience with breast cancer as a young mother at the same time her father faces a recurrence from prostate cancer. This is a loving book about a father/daughter relationship, and among other things. Lighthearted and moving.

Lopsided by Meredith Norton
Funny (bordering on caustic), appropriately angry, moving story about a young mother with inflammatory breast cancer and her experience of treatment. Refreshingly candid.

It's Always Something by Gilda Radner
Dated now in terms of treatment experience (this memoir describes Radner's experience with ovarian cancer in the 1980s) it is nonetheless classic Gilda Radner—incredibly funny, moving, and heartbreaking all at once.

A Guide to Survivorship for Women with Ovarian Cancer by F.J. Montz, Robert E. Bristow and Paula J. Anasasia

Trials by Anne Sandstrom

100 Questions & Answers About Ovarian Cancer, Second Edition, by Don S. Dizon

Gilda's Disease: Sharing Personal Experiences and a Medical Perspective on Ovarian Cancer by Steven Piver

A Feather in My Wig: Ovarian Cancer Cured, Seventeen Years and Going Strong! by Barbara R. Van Billiard

No Time to Die: Living with Ovarian Cancer by Liz Tilberis

Ovarian Cancer Journeys: Survivors Share Their Stories To Help Others by Ayala Miron

Cure Magazine
Combining science with humanity, CURE makes cancer understandable

clinical trials

National Cancer Institute Ovarian Cancer Clinical Trials
This page updates periodically about government-registered clinical trials.

Dana-Farber Cancer Institute's Ovarian Cancer Clinical Trials
Learn about trials through DFCI in the Boston area.

Memorial Sloan-Kettering Ovarian Cancer Clinical Trials
A listing of trials endorsed by Memorial Sloan-Kettering in the New York area.

The Mayo Clinic's Ovarian Cancer Clinical Trials
Covering a great expanse of topics, the Mayo Clinic's registered trials are listed here.

insurance advocacy & assistance

Ovarian Cancer Prescription Drug Financial Assistance Programs

support groups

Bald Is Beautiful

MD Anderson's Ovarian Cancer Support Group

DailyStrength—Online Ovarian Cancer Support

Look Good...Feel Better

Strength for Caring: A Place for Caregivers

Friends of Mel Foundation

wig suppliers & personal care

The Salon at 10 Newbury, Boston, MA

Surviving HairLoss

TLC Direct

Hats With Hair

Healing Threads