As the title of this post translates, I’m trying to understand ovarian cancer and why there is very little information out there about it until it becomes personal.  Last week, I didn’t say goodbye to a dear friend…I said, “see ya later!”  I believe I will see her again and at that time she will be happy and healthy.  Until then, she is only a thought away.

It’s been a year since I was diagnosed with Ovarian Cancer Stage IIIc. I had the surgery, Chemo, and some of the side affects. My ca125 is 13 today. About a month ago it was 11, and I was so upset, but the doctor told me that my levels go back in forth between 11-14. I did have a catscan and everything looked good, thank god. I feel great!  I look back at what I have been through in a year, and I can’t believe how much I have overcome. I sometimes forget that I have it. But, when I do remember it does make me emotional. I do try to keep positive and just keep going on with my life. I do feel like I want to join a support group to talk to other women to see if it’s ok to feel sad, and cry even at this point. I have FAITH, COURAGE, STRENGTH and that is what keeps me going.

Hi

hi im 25 yrs old a mother with a 3yr old girl over the past months i have been disappearing literally i have no appetite hardly pass stools always constipated tired have painful sex vaginal discharge spotting everyday periods every week i have no stds or hiv but i do have a hyperthyroid and have been diagnosed with graves about 1 mth ago my hair is falling out so much that i get scared to wash it  i can go days with out eating im only thirsty

Hey I am 25 years old. I have been getting pelvic pain, I always have had pelvic pain,  but it is getting worse. I have lower back pain, which I have always had but it is getting worse as well, I frequent urination, sometime I have diahrrea at other times I do not. I would always get a period every month, but all of the sudden two months ago my menstral cycle just stopped. Could I have ovarian cancer?

On Sept 26, 2009 I met with my doctor to hear the results of an ultrasound. That day changed my life. Time since then has been huge! I had a complete hysterectomy, removal of three large rumors,months of chemotherapy and two follow up check ups with the next three month check up coming in February 2012.Being a very factual,realistic, ADD type A person, and a Sagitarian to boot, I asked questions. Lots of questions! The key is don’t ask if you can’ handle the answers good or scary. I needed truth not maybes or what ifs.I need facts. I asked what the worst chemotherapy could be so I was prepared. It didn’t get as bad as I expected so that was a bonus. My hair before was prefect, really it was! Long blonde natural curl never dry nor oily. Now I have this fun very curly fine hair afro look! It’s all good. I don’t get real concerned with the small things anymore. I don’t give my precious life time/hours to pettiness or things that in the big picture just don’t matter. Cancer has taught me that & much more. Yes, I get scared sometimes and have my melt downs and good sobbing mess cries but my God do I appreciate every single thing more than ever. I LIVE life. I am not a thrill seeker. More of a green run Farris wheel gal so at 56 years of age life is different for me now. Literally one day at a time! Would love to chat with more people who have or had ovarian cancer. I get symptoms that concern me and am dealing with chemo after effects like bowel, arthritis pain and allergies to lots of things. I’ve discovered everyone has a cancer story and agree with “anxiety”s comments that you can’t truly know unless you have had it yourself. Not taking away from the dear people who support us or try their best to relate but there is a difference. I saw it in the eyes of others sharing the chemo experience at the cancer treatment centre. We looked at each other with a sense of knowing and understanding only we could truly grasp. There we all were, bald,yellow and puffy round faces like the Walmart happy face without the happy. There was a bond of compassion and kind of scared support we shared. I appreciated that from others. I look forward to your words.

I was diagnosed with stage 3 June 2011, I completed my chemo November 9th and was able to receive all 18 treatments. I’m very fortunate, I had very few side effects (except hair loss) and my CA125 is down to 8 (from 357 when diagnosed). I went yesterday for a PET Scan and have a follow up with my Oncologist on Tuesday the 13th. Even though all my tests have been great, I have unbelievable anxiety waiting for these results. I’m a very positive person and I know this doesn’t make sense to be so concerned, but I can’t help it, and unless you’ve been through it, you can’t understand. My family and friends are so supportive but I need to hear from someone that’s gone through what I am going through. I also have had a cramp in my left side on and off for a few months, my doctor said it’s just my bowels getting back in place after the surgery I had (5.5 hours). Does anyone have any advice, trust me, the vodka isn’t working

Just thought I would introduce myself as a new member here.  I’m reese, and was dx. with stage IIIc ovarian cancer in May 2011.  Went through the surgery, and finished Taxotere/Carbo in Sept.  I was originally on Taxol, but the neuropathy was such that I had to switch to another regimen.  My first scan was OK; some additional nodes were noticed but the doc didn’t feel there was any active disease.  I am now dealing with another complication due to the neuropathy…frustrating!

I see the gyn. onc. in January after I get my blood work.

Three weeks ago I got the call that after my gyn ordered an ultrasound (I had just an inkling of some lower pelvic pain every once in awhile, not everyday, and had horrendous indigestion) I got the call, masses on ovaries, come in and take a blood test, like today! This was the worst period of my life. Anxiety and not much sleep for the 4 days between hearing this, taking the blood test and hearing the results, actually just about killed me. It was a very devastating low point in my life, where I felt like I would be dead in a month (the mind can be an awful thing), I found a wonderful gyn oncologist. He actually made my husband and I feel positive and relieved with what our next steps would be.

Well, went 2 the doctors & explain 2 them that I was having pain in lower abdomen & during sex.  I feel sleepy & sick all the time & extremly bloated…  @ 1st she acted as though it was nothing until she examined me & said she wanted an ultra sound cause she felt something abnormal.  Had the ultra sound & left ovary was okay size w/a few cyst but the right one look huge w/so many cyst & man when she check that left side it hurt so badly it brought me 2 tears.  I am hurting more now after the ultra sound then I did before even having the test…  Is that a bad sign for a ovary 2 be so abnormally big?  Wish they would hurry & call me!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Coming up on 2 years.   December 11, 09 is when I had surgery.  Chemo after that.   Looking back, I still can’t believe this has happened to me.  Can somebody please tell me WHAT CAUSES OVARIAN CANCER please.  Everyone is always talking about how to cure this thing and I’m certainly hopeful for that but, BUT…… It seems to me that we should be trying to find out what in this world is causing so many people to get cancer in the first place.   NOT RISK FACTORS!!!    CAUSES!!!!

This is my first post..  I don’t even know where to begin..  I am so scared and nervous.  I went for a routine pap smear last Tuesday and I told my doctor my periods were heavy with large clotting. Nothing hurts but I do feel bloated at times. He did a endometrium biopsy to rule out ovarian cancer. I am 47 years old now but in 2008 when I delivered my son c-section, I was told I had 3 cysyts ( I didn’t even know I had) and one had ruptured during the c-section, it took a long while to stop the bleeding but they finally closed me up, I also had my tubes tied at the same time.  In 2009 I went to the doctor because I noticed I was having 2 periods in one month, they did a endometrium biopsy and vaginal sonogram but thank goodness at that time results reported no malignancies. So now here I am again waiting for these test results.  I am scheduled to go back next Tuesday for the results and they are going to do a sonogram using saline.  I’ve been reading some of the posts and my goodness you women are so strong and courages I admire your strength and will to fight this dreaded disease.  I have 3 boys ages 20, 17 and 3 that still need me and if my test come back positive I know it will be very hard for me to cope with but I am a fighter and a very determmined woman and I will give it my all to fight this horrible disease if this is my future…  Any advise is appreciated.

Hi, my name is Latoya & I have endometrosis as well as PCOS!!!!!!  I recently have bloating 2 where I look like I am very prego & abdominal pain & feeling full quickly while eating, frequent urination, back pain & pain during sex & unexplained weight gain very fast weight gain as well as tired all the time which we said could be depression.  I have cancer w/in the womens area run all through my family history.  Should I be worried about this?  I am scared not sure what 2 do?

I write this blog to provide support and inspiration to all of you, the woman and her caregivers. This is not at an easy journey, but I believe in the power of positive thinking, humor, love, and prayer. They may not be cures, but they are avenues for coping, strengthening, and surviving.

At age 68 I was diagnosed with mmmt (a sarcoma) ovarian cancer, Stage IIC. I had had bloating and weight gain, then some increased constipation and mucus around the stools.  I had a complete hysterectomy and colon resection, followed by six rounds of carboplantin and taxol. Like each of you my life changed 180 degrees, yet it was not all bad. Some very important lessons were learned; new friendships developed; and a commitment to help others with any cancer arose.

Just told i have ovarian cancer i feel as if my life ended that day i no longer have the will to even want to fight this it seem’s we lose ! I cant even smile it hurts me so much I feel like i have lost my best friend and its me ! I see no way out